Don't worry, it's a term of endearment! I shamelessly put the address of my blog on all of our Christmas letters to try to increase my following to a whopping 10!! (Let's not go crazy now...) :) No, seriously, I thought that this might be a good way for some of our not-so-near-by family and friends to see what we are up to throughout the year rather than waiting until Christmas to get the yearly review! So, if you're new to my blog, welcome! I hope you stick around and read about all of the exciting news of our family...stay tuned for my fantastic account of my bout with a nasty virus...are you on the edge of your seat??? :)
If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS. If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan. The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google. My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!! (a combination of all 3 is great too!) :) Notice that it's not to get famous and it ...
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