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The Next Steps

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We met our new surgeon, Dr. Anari, at CHOP today and so many fears were alleviated!  He is so kind AND knowledgeable.  It was obvious that he had studied Abby’s file.  In fact, Dr. Anari told us that Dr. Campbell discussed all of his complex cases with him and they created their plans going forward together in May/June.  That Dr. Campbell...💕

I am feeling really good about our decision to go to Anari.  He wants Abby to enjoy being a kid this winter and wait until the spring for an expansion.  He really emphasized the quality of life and Abby was thrilled not to have surgery right now!

We talked about the long-range plan (which is tentative at best when you have a kid like Abby!) and discussed possibilities for her kyphosis.  Kyphosis is a monster and is very difficult to treat, but she is stable for now. He seems to be a planner, which made my type A heart happy!

We were also able to enjoy lunch with two other VEPTR families, which is always so great!  Talking with people who get it makes the journey a little less lonely.  

All in all, it was a good day!  We are heading home now and hoping for the same non-existent traffic we had on the way to Philly!

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