Friday, June 3, 2016

Getting there

Abby is getting better every day!  Pain control is still an issue, but I talked to orthopedics yesterday and they upped her meds.  She has been much better today though, and only had one dose in the morning all the way until bedtime!  

Abby got an adorable gift yesterday from Feel Better Friends!  This doll was made to look just like her, scars and all!

The doll has a gtube, 


A Trach scar, 


And even Veptr scars!

She came with several outfits, including an Elsa dress!

It is adorable and came at the perfect time!

Today, we ventured out for the first time to enjoy a free donut with Amy and Lucy on National Donut Day!  (And can I just say I am acutely aware of the distance of the handicapped parking from the door right now?!  But she made it!)


With a bit of convincing, Abby walked her doll in the stroller down to the bus stop. This was the longest distance she has gone, and she did sit in the stroller on the way back.  But she is making steady progress!

This evening we went to a book fair preview at the school.  It wasn't very crowded and we were able to see a few friends!  The kids brought their money and each bought a few books.  Abs motored in her wheelchair, which we will be using in public for a while (both for endurance and safety right now).

Abby is still having trouble getting into her bed (she has a loft with stairs), so she's sleeping on a crib mattress on the floor for now. I think she might make it into her bed tomorrow.  We'll see!

I've been busy catching up on laundry, bills, work, and making up for being a slacker mom to Caleb.  :)

1 comment:

Raelyn said...

Julie....
"Abby is getting better every day! Pain control is still an issue, but I talked to orthopedics yesterday and they upped her meds. She has been much better today though, and only had one dose in the morning all the way until bedtime!" Thanks be to God!! ;-D
I freakin' love that doll!! I want one!! When I was growing up, I had a brown-haired, blue-eyed Crimp 'n Curl Cabbage Patch doll who I named Nicole Jane {I still do, actually!! She has long ago lost all of her clothes, because my nieces "Amethyst" and "Opal" play with her, but....} if you parted Nicole Jane's bendable hair, it looked as though she underwent craniosynostosis reconstructive surgery.... Just like me!! So I used my imagination and decided that she did!! ;)
"With a bit of convincing, Abby walked her doll in the stroller down to the bus stop. This was the longest distance she has gone, and she did sit in the stroller on the way back. But she is making steady progress!" Go Abby, go!! Go Abby, go!! Go Abby, go!! Go Abby, go!! Go Abby, go!! ;-D
"Stay hard, stay hungry, stay alive", Raelyn