Yesterday was quite a whirlwind! We left the house at 6:30 am and got to CHOP around 10:45. Abby got Xrays and then we saw the team. Basically, what has happened is an unforeseen complication where the hump that was supposed to be corrected by the long rods has been pushed further up the neck. (Kind of like pushing down a bubble on wallpaper, only for it to pop up somewhere else). We are playing whac-a-mole. Yay.
Dr. Campbell is going to do something, but her "unique" anatomy makes it a challenge. She got a ct scan today to give him more information. He has an interdisciplinary conference next Friday and is going to discuss with the team to see if they have ideas. In his words, "all of these kids are special and I've never seen the same problem twice." So he has to figure out what he is going to add to fix the problem. We know that there will be additional hardware added soon, but we will know more next week. We are hoping that she can have the surgery and be recovered by the time school starts, but we will see.
This is an unforeseen complication and nobody is happy about it, but it needs to be fixed so Abby can walk upright again.