An Angel for Our Angels, Volume 2

So many stories. So much gratitude. Thank you will never be enough, but we share our stories so that others will know just how much Dr. Campbell means to us. We are #veptrstrong because of him.

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"Our first visit with Dr Campbell we knew he was the one to care for our Audra. He was so kind and gentle and didn't even need x-rays to say yeah I bet she is in pain and we are gonna fix that. The love he showed my family will never be forgotten."
-Tonya Ankeney

"I think we all owe this man more than we can ever repay. I know he saved Joey’s life. At 3 years old the other doctors told us there wasn’t much we could do for him but wait and see, which would have meant death. Our family is so grateful for him and those magic hands and big brain. I just hope he knew all the families he touched."
-Ashley Moore

"We will always be grateful for this wonderful man. I will never forget the day we flew to San Antonio and met with him, Dr. Smith and Lori. I was scared and uncertain of her future. Although he gave us no promises, I felt like we finally had hope and we were in great hands. The VEPTR was not FDA approved yet but we all knew it was her only chance. What a journey we started back in 2002 but oh so worth it. Lacey was 3 yrs old and 18 lb. and He nicknamed her Big Red. Thank you Dr Campbell for the love and dedication you gave to your 6th floor Rib Kids. You will be so missed! Prayers for the Campbell family and the VEPTR families!"
-Tamarah Pate

"The thing he always said that stuck with me when I asked him what Ryan could and couldn’t do: “I can always fix a broken rod, but I can’t fix a broken spirit.” Based on those words, Ryan has done, and can do, almost anything she puts her mind to. She just swam in her first swim meet last week when so many told us she never would. I will be forever thankful that this man came into our lives."
-Molly Steele

"Words can't explain what this incredible man means to our extended family. When my son was 6 weeks old, we took him to San Antonio to meet Dr's Campbell and Smith. When we got there, Jordan coded in the lobby at Santa Rosa Hospital. After a nerve-wracking trip to the ER we met Dr. Campbell for the 1st time. He looked at Jordan and in a one second, he said... Jeunes Syndrome.. we can help! I am sure there are so many stories like this on how Dr. C has changed our children's lives forever. God Bless Dr. Campbell, RIP."
-Michael Wolleben

"" '-"Although Ian technically was not one of Dr. Campbell patient's, he was part of the FDA experimental program. We met Dr. Campbell three times: Dr. Campbell was in the OR when Ian received his titanium rib (he was patient #2 at Shriners in Philadelphia in 2002), at a conference where Dr. Campbell talked about success stories and our son was featured, and at the picnic celebrating the FDA's approval. Sending our sincere thanks for his pioneering work and condolences to his family."
-Cindy Peverall

Cerebrocostomandibular Syndrome

If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS. If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan. The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google. My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!! (a combination of all 3 is great too!) :) Notice that it's not to get famous and it never wi

The Potty Man

Caleb LOVES to go potty! I have never heard a potty training story like this one....Caleb tells us when he needs to go, we take his diaper off, and he goes! Now, is it perfect? No, not at all! We aren't trying to potty train at at all, but we figure every time he goes is one less diaper we have to change! The only time we consistantly put him on the potty is when we give him a bath (he always pees in the tub, so we know he needs to go!) He almost always goes on the potty now instead of the tub though. When he's not "really" going potty, he's pretending to go potty! He's such a funny kid!

Lego Party: Favors

I'm a little slow in posting the Lego Party pictures, but I think I have a few excuses I could use. At any rate, I wanted to share what I did for the party! It will take a few posts, so stay with me. I'll start with how I did the favors. These are the goody bags I made. I just bought solid colored gift bags and matched scrapbook paper to each bag. Then I punched circles and attached them with the 3D foam tape so that the circles were raised. I used the keychain (explained below) as a name tag on the outside. These are Duplo blocks. I put a round magnet on the back and...voila! A magnet! (note: hot glue doesn't work so well...I ended up reglueing them with my apoxy because the magnets fell off.) I made crayons using Lego man crayons. Yes, I know this guy has lost half of his leg. The others were already packaged and I didn't want to open one up just to get a picture. I used a Lego mold to make the crayons. Caleb put small pieces of crayon in each m

Life as a Leach

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