Sharing Abby's Story


We have loved every opportunity we have had to share Abby's story with others.  God has used this journey in ways we couldn't have imagined and we are thankful for the chance to tell others about the miracles He has performed in Abby's life!

This is the original story written in November 2011 about Abby.  It focuses on how we used social media to learn about her diagnosis and meet others with CCMS.

This is the same story, but with some pictures.  This is the one that was printed in our local newspaper.

Here is a story that was featured in Life Site news, a pro-life organization, in February 2012.

I wrote a guest post for Moms of Miracles about Abby's syndrome in January 2012.  The blog focuses on a rare disease or syndrome each week in hopes of connecting other parents.

This is another guest post I wrote for Carter's Hope in February 2012.

Rare Love is a Facebook group I started for families dealing with rare diseases.

Here is an article written about our team for The Red Shoe Shuffle.

This is a news clip Abby and I did for The Red Shoe Shuffle to benefit The Ronald McDonald House of Baltimore.

This is a digital version of the magazine Chesapeake Family.  A story about the Ronald McDonald House's 30th anniversary is in it, and our family was interviewed.

The Global Genes Project is an organization that spreads awareness of various rare diseases.  We were interviewed about Abby and they included pictures.



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