Skip to main content

You Look Tired

"You look tired," says the unassuming clerk at the grocery store to the mom with two kids.  One, a bouncy little girl with golden curls, rides in the car in front of the cart while the other, a boy of maybe two, stares blankly into space in the front basket, supported by the blankets on either side of him.  His tongue escapes his mouth a bit and there is a little drip of drool on his chin.  A plastic tube protrudes from his neck, and he makes a noisy sound each time he breathes.

"Tired?" the young mom shakes her head and chuckles.  "Yes, I suppose I am tired.  I'm tired of my son's life having to be so hard.  I'm tired of every achievement finally coming only after months of therapy and exercise.  I'm tired of the looks that other people give the son that I love so much.  I'm tired of the stares I can feel even when I'm not looking.  I'm tired of the rude and insensitve comments people make.  I'm tired of the phrases mentally retarded, compared to normal children, and severe learning delays.  I'm tired of the petty complaints people have about how their kids talk too much when all I wish for is for my son to say Momma.  I'm tired of the medical bills that we can't afford to pay, yet we find the money because we want to give our son the best chance at life.  I'm tired of feeling like I live at the hospital more than my house.  I'm tired of feeling isolated, even from the friends who want to understand but just can't.  I'm tired of doctors attempting to dictate what my son will and will not be able to do.  But most of all, I'm tired of others being too afraid to look past my son's outer appearance to discover the joy and love he holds inside."

With that, the courageous young mother kissed her son on the top of his head and pushed her cart to the exit of the store.  If she had looked back over her shoulder, she may have noticed the tears streaming down the cheeks of the clerk.

Comments

Popular posts from this blog

Cerebrocostomandibular Syndrome

If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS.  If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan.  The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google.  My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!!  (a combination of all 3 is great too!)  :)   Notice that it's not to get famous and it never wi

Bath Time Photos!!

As promised, here are lots of photos of Abby's first bath. Caleb was supposed to be in bed, but the bathroom is right next to his room... "I'm not too sure about this..." Once she learned how to splash, she was all smiles! Her first good hair wash! Gotta protect the trach! She really liked getting water poured on her head.  It was cute! Smiley (and bubbly) for Daddy while he dried her off. All clean!!  (Note the Lysol wipes in that last picture.  They are NEVER far away!)

Imagination Movers Photo Recap

Seriously, The Imagination Movers were so much fun!  They played lots of their own music, with some classic rock mixed in for the adults.  There were also quite a few jokes and references to Baltimore, which was kind of fun.   The whole night centered around this robot named Rock-o-Matic, or "Rocko."   This is Mover Scott, and he wears Wobble Goggles that help him see new ideas.  Caleb and Abby have a pair of goggles too.  :) There are 4 main Movers that are part of the TV show, but they have 2 extra movers to play instruments and do back-up vocals in their live tour. Abby finished up her feed before the show started so that she would be free to dance! My dancing queen did NOT want to sit in my lap.  The row in front of us was empty, and that is where she stood almost the entire show--dancing the night away. My Imagination Movers  Caleb did his share of singing and dancing too.  He knows most of the words to the songs, so