My Little Chubball

Abby weighs 4 lbs, 12 oz!! Wahoo! We are close to that magical 5 lb mark! Go Abby!

In other news, we toured Mt. Washington Pediatric Hospital yesterday (where they will eventually send Abby for our trach classes and her transition home). It is a really nice facility for when Abby is ready to go there. We just don't want her to go too early and not truly be ready for it, because it is not a critical care unit like they have at UMMC.

In other, other news, the internet at RMH stopped working Friday afternoon just in time for the weekend! I'm hoping that it will be back up and running tomorrow. Sorry for the lack of posting. I'm currently using the computer at my parents' house. (In case you ever wonder how I post at certain times, Time Delay is my friend! I can set it to post at a certain day and time, which means I can write several posts at once and space them out. This, for example, was written at 10 a.m. today!) :)

Comments

ds said…

Santa will most definitely find Caleb no matter where he is!

November 21, 2010 at 10:12 PM

gail said…

I worked at Mt. Washington for a summer back in 2003. The staff there (administrators, doctors, nurses...everyone!) is great. The hospital for sick children is a very similar hospital in DC if you are, perhaps, looking for some place a little closer to home.

November 21, 2010 at 11:44 PM

Cerebrocostomandibular Syndrome

If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS. If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan. The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google. My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!! (a combination of all 3 is great too!) :) Notice that it's not to get famous and it never wi

Bath Time Photos!!

As promised, here are lots of photos of Abby's first bath. Caleb was supposed to be in bed, but the bathroom is right next to his room... "I'm not too sure about this..." Once she learned how to splash, she was all smiles! Her first good hair wash! Gotta protect the trach! She really liked getting water poured on her head. It was cute! Smiley (and bubbly) for Daddy while he dried her off. All clean!! (Note the Lysol wipes in that last picture. They are NEVER far away!)

Imagination Movers Photo Recap

Seriously, The Imagination Movers were so much fun! They played lots of their own music, with some classic rock mixed in for the adults. There were also quite a few jokes and references to Baltimore, which was kind of fun. The whole night centered around this robot named Rock-o-Matic, or "Rocko." This is Mover Scott, and he wears Wobble Goggles that help him see new ideas. Caleb and Abby have a pair of goggles too. :) There are 4 main Movers that are part of the TV show, but they have 2 extra movers to play instruments and do back-up vocals in their live tour. Abby finished up her feed before the show started so that she would be free to dance! My dancing queen did NOT want to sit in my lap. The row in front of us was empty, and that is where she stood almost the entire show--dancing the night away. My Imagination Movers Caleb did his share of singing and dancing too. He knows most of the words to the songs, so

Life as a Leach

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