All I Want for Christmas

On Saturday, we went with my parents to Arundel Mills to get me some snow boots for a winter walking around Baltimore. In Bass Pro Shop, Santa happened to be visiting and they were offering free pictures! Caleb has no fear of Santa anymore and was really excited to tell him what he wanted for Christmas.

When Santa asked the very question that is on every child's mind all year long, Caleb answered very quickly.

I want Abby to come home.

Santa glanced up at us and noted the fresh tears falling before he asked Caleb who Abby was. He explained that Abby was his sister and that she was sick in the NICU. (We filled in a few details for Mr. Claus!)

Unfortunately, the reality is that Abby will not be home for Christmas. However, we are going to be as close to her as possible (at RMH) so that we can celebrate Christmas with our entire family! It wouldn't be Christmas without Abby Girl!

We've prepared Caleb for this and he knows that we will be celebrating at RMH this year. Now we're just trying to figure out how Santa is going to visit us! Maybe he'll leave Caleb a note telling him the presents are in the car!

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Cerebrocostomandibular Syndrome

If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS. If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan. The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google. My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!! (a combination of all 3 is great too!) :) Notice that it's not to get famous and it never wi

Bath Time Photos!!

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Imagination Movers Photo Recap

Seriously, The Imagination Movers were so much fun! They played lots of their own music, with some classic rock mixed in for the adults. There were also quite a few jokes and references to Baltimore, which was kind of fun. The whole night centered around this robot named Rock-o-Matic, or "Rocko." This is Mover Scott, and he wears Wobble Goggles that help him see new ideas. Caleb and Abby have a pair of goggles too. :) There are 4 main Movers that are part of the TV show, but they have 2 extra movers to play instruments and do back-up vocals in their live tour. Abby finished up her feed before the show started so that she would be free to dance! My dancing queen did NOT want to sit in my lap. The row in front of us was empty, and that is where she stood almost the entire show--dancing the night away. My Imagination Movers Caleb did his share of singing and dancing too. He knows most of the words to the songs, so

Life as a Leach

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