Skip to main content

Exactly a Month ago Today...


...I gave birth to a beautiful, dark haired 4 lb baby girl named Abigail Elizabeth Joy.  Now that I have had processing time, I want to relive that night a bit.

I remember that she flew out so fast (because of all of the extra fluid) that the doctor nearly dropped her!  I'm glad I didn't actually see it, because I would have been totally freaked out by that!

I remember that I didn't hear her cry, and that worried me immediately.  Everyone wants to hear the baby cry.

I remember that we were unable to see her even for a second before the NICU staff wisked her away.  While we knew that her care was of utmost importance, it was difficult not to be able to bond with your daughter like under normal circumstances.

I remember the kind anesthesiologist being the one to give us occasional updates on her condition while they worked on her in the room across the hall.  He was the only one who was able to give us any information, and it was so helpful.

I remember that the same anesthesiologist was able to convince the NICU staff to let us see her for a minute before they took her downstairs to the NICU.  I was in shock at how tiny and quiet she was!

I remember that I never got to see her before they put the trumpet in her nose, so I had no real visual of her entire face until after she got her trach.  (We have never seen her without tubes)  :(

I remember asking the LD nurse what I needed to do in order to go see my baby.  She told me and I immediately got to work checking those things off of my mental list.  I was downstairs in record time!!

I remember feeling horrible that I didn't know which baby was mine when I walked into the door of her room.  There is nothing normal about not being able to pick out your baby because you only got to see her for a few seconds!

I remember the feeling in the pit of my stomach when the nurse practitioner took us over to her computer to see her rib xray.  I knew something was wrong the minute I looked at the screen.

I remember sitting by Abby's bed for a long time that night crying and praying that she would be okay.  It's funny how okay has a different meaning now.  Abby will be okay, but probably not in the way most would hope.  She will be more thanokay bcause she is perfect in God's eyes and will make an amazing difference in this world!!

So much can change in a month!  I can't say that I can look back on this last month and be happy about it, because it has been tough.  However, I can definitely reflect and say that God has taught me more in this last month than in my entire life!  I have learned utter dependence on Him, which is very difficult to learn when everything is a-ok!

So, as hard as it is, I can say that I wouldn't change anything about this last month--because if things had been different, if we had been able to "fix" Abby with a simple pill...then God wouldn't have been able to reveal Himself to us in so many new ways.  We would have missed out on so many conversations about God with people here at RMH and UMMC.  Abby wouldn't have been able to touch the lives she has already.  And I wouldn't have learned what it meant to truly choose joy.

Tough?  Yes.  Horrifying?  Absolutely!  But I know one thing:  our lives have certainly been changed for good!

Comments

Popular posts from this blog

Cerebrocostomandibular Syndrome

If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS.  If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan.  The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google.  My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!!  (a combination of all 3 is great too!)  :)   Notice that it's not to get famous and it never wi

Bath Time Photos!!

As promised, here are lots of photos of Abby's first bath. Caleb was supposed to be in bed, but the bathroom is right next to his room... "I'm not too sure about this..." Once she learned how to splash, she was all smiles! Her first good hair wash! Gotta protect the trach! She really liked getting water poured on her head.  It was cute! Smiley (and bubbly) for Daddy while he dried her off. All clean!!  (Note the Lysol wipes in that last picture.  They are NEVER far away!)

Imagination Movers Photo Recap

Seriously, The Imagination Movers were so much fun!  They played lots of their own music, with some classic rock mixed in for the adults.  There were also quite a few jokes and references to Baltimore, which was kind of fun.   The whole night centered around this robot named Rock-o-Matic, or "Rocko."   This is Mover Scott, and he wears Wobble Goggles that help him see new ideas.  Caleb and Abby have a pair of goggles too.  :) There are 4 main Movers that are part of the TV show, but they have 2 extra movers to play instruments and do back-up vocals in their live tour. Abby finished up her feed before the show started so that she would be free to dance! My dancing queen did NOT want to sit in my lap.  The row in front of us was empty, and that is where she stood almost the entire show--dancing the night away. My Imagination Movers  Caleb did his share of singing and dancing too.  He knows most of the words to the songs, so