Skip to main content

Vacation of Desperation?

We took a little jaunt to Philadelphia yesterday, jokingly saying that we were pretty desperate to get a vacation.  I can assure you, this was no vacation!

Monday evening, we noticed that Abby's incisions were oozing a bit and the drainage was enough that it was seeping through her shirt.  Everything was pretty red and goopy, so I followed the nurse practitioner's advice and took pictures.  I called first thing in the morning on Tuesday and emailed them the pictures.  I got a very quick call back saying that we needed to bring her in...to CHOP...4 hours away.  I begged and pleaded with them to let us go to Hopkins (you know, that world renowned hospital a mere two hours away?!), but they insisted that we go to the CHOP ER with the expectation to be admitted for a few days.  Yay.

So, I called Matt (who had already left for work) and told him to turn around.  We hurriedly packed some stuff in the suitcase and called my mom to make some arrangements for Caleb.  I had just put him on the bus for his first day of school and now we wouldn't be there when he got home.  Sigh.  Between my mom and my sister, they expertly took care of everything with Chloe and Caleb.  <3 p="" them="">
At Hopkins, when we have been told to go through the ER for respiratory issues, the ER is expecting us and a pulmonologist is alerted upon our arrival.  We are seen pretty immediately by people who specialize in the reason we were there.

Not the case here, and I was kind of laughed at for thinking that would be how it worked.  Nope.  We saw three nurses, an ER resident, and the ER attending before we ever saw an orthopedics resident.  And nobody in the ER had ever heard of VEPTRs or had even met Dr. Campbell.

Now you know my thoughts on residents.  I'm not a fan.  But I did like this orthopedics resident more than most because he didn't make any decisions without talking to Dr. Campbell.  Dr. C couldn't see us because he was in the OR, but at least he was consulted.

After much deliberation, it was finally decided to start Abby on some antibiotics and change some of the steristrips.  Yep, that's it.  That was all they did after we trekked four hours and abandoned our son on his first day of school.  This could have easily been done at Hopkins (or at the pediatrician's office, for that matter!), so we were a bit frustrated.  Now we know.  I think we'll be going to our pediatrician before we even bother calling CHOP.  For whatever reason, they are anti-Hopkins and want every little thing done there...xrays, bloodwork, pre-op...everything!

All of this in the ER took quite a long time and we'd already made hotel arrangements because we were expecting to be admitted.  The cancelation deadline for the hotel had passed by the time we were discharged, so we figured we might at as well stay if we had to pay anyway.  And, it was rather late and Matt wasn't all about driving 8 hours in one day with a 4 hour ER visit in between.

We left this morning and got home around 2:30 after picking Chloe up.  Caleb was very happy to see us and everyone is happy to be home!  Abby's back is looking a little better with 4 doses of antibiotics in her and she was thrilled to take a bath in the tub instead of having the lie down on the counter.  (I used this clear plastic covering from the hospital to cover up the wound and didn't fill the tub at all, but she was a much happier little girl!)

The things we do to get a vacation around here!  :)

Comments

Popular posts from this blog

Cerebrocostomandibular Syndrome

If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS.  If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan.  The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google.  My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!!  (a combination of all 3 is great too!)  :)   Notice that it's not to get famous and it never wi

Bath Time Photos!!

As promised, here are lots of photos of Abby's first bath. Caleb was supposed to be in bed, but the bathroom is right next to his room... "I'm not too sure about this..." Once she learned how to splash, she was all smiles! Her first good hair wash! Gotta protect the trach! She really liked getting water poured on her head.  It was cute! Smiley (and bubbly) for Daddy while he dried her off. All clean!!  (Note the Lysol wipes in that last picture.  They are NEVER far away!)

Imagination Movers Photo Recap

Seriously, The Imagination Movers were so much fun!  They played lots of their own music, with some classic rock mixed in for the adults.  There were also quite a few jokes and references to Baltimore, which was kind of fun.   The whole night centered around this robot named Rock-o-Matic, or "Rocko."   This is Mover Scott, and he wears Wobble Goggles that help him see new ideas.  Caleb and Abby have a pair of goggles too.  :) There are 4 main Movers that are part of the TV show, but they have 2 extra movers to play instruments and do back-up vocals in their live tour. Abby finished up her feed before the show started so that she would be free to dance! My dancing queen did NOT want to sit in my lap.  The row in front of us was empty, and that is where she stood almost the entire show--dancing the night away. My Imagination Movers  Caleb did his share of singing and dancing too.  He knows most of the words to the songs, so