Skip to main content

Post-op day 4

Abby's days are getting better, and she is enjoying the playroom.  We even were able to take her off of the floor for a little while for a change in scenery.  

Last night was really rough.  Neither of us got much sleep at all.  They transitioned her to all oral meds and the oxy just isn't working as well as the morphine.  The nurse finally gave her a rescue dose of iv morphine to get her through the pain.  They were able to up her Valium to hopefully fill in those gaps, so I am hoping tonight is better. It's not too much of a problem during the day, but nighttime is hard because the back muscles get stiff and start to spasm.  

Bright and early this morning, Joe Resident sauntered in and announced that we would be going home today!  Uhhhh....she's on oxygen, her pain isn't managed, and Dr. c said he would see us Monday!  Nope! Our nurse was so annoyed with him!

The big issue is that Abby has become pretty oxygen-dependent.  I can't even take it off for a minute without her desating, as I learned when I unhooked her to put her on the potty and she went from 96 to 78 in 30 seconds.  Our day nurse thought she needed a chest X-ray and I agreed.  After all, she wasn't oxygen-dependent when we came here and now she needs a liter to even stay above 90!  Even with a liter, she sometimes dips.  There was also a little incident that happened during surgery where the lung got knicked, and I wanted to make sure that wasn't the cause of the problem.  

The same Joe Resident from this morning said she just needs to take deeper breaths.  Try telling that to a 3 year old when every breath hurts!  I said I wanted one anyway, so we just got back.  I don't know if we will get results tonight.  

Please pray for her breathing, as well as that Abby starts eating and drinking well. It has been a very slow process.  So far, no one has mentioned a feeding tube.  Let's hope we get her going soon before they do!

Sorry these aren't more entertaining.  I'm on the iPad and typing is hard to do.  Plus, I'm downright exhausted!  A basic update is about all I can do. Bare with me!

Comments

Popular posts from this blog

Cerebrocostomandibular Syndrome

If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS.  If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan.  The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google.  My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!!  (a combination of all 3 is great too!)  :)   Notice that it's not to get famous and it never wi

Bath Time Photos!!

As promised, here are lots of photos of Abby's first bath. Caleb was supposed to be in bed, but the bathroom is right next to his room... "I'm not too sure about this..." Once she learned how to splash, she was all smiles! Her first good hair wash! Gotta protect the trach! She really liked getting water poured on her head.  It was cute! Smiley (and bubbly) for Daddy while he dried her off. All clean!!  (Note the Lysol wipes in that last picture.  They are NEVER far away!)

Imagination Movers Photo Recap

Seriously, The Imagination Movers were so much fun!  They played lots of their own music, with some classic rock mixed in for the adults.  There were also quite a few jokes and references to Baltimore, which was kind of fun.   The whole night centered around this robot named Rock-o-Matic, or "Rocko."   This is Mover Scott, and he wears Wobble Goggles that help him see new ideas.  Caleb and Abby have a pair of goggles too.  :) There are 4 main Movers that are part of the TV show, but they have 2 extra movers to play instruments and do back-up vocals in their live tour. Abby finished up her feed before the show started so that she would be free to dance! My dancing queen did NOT want to sit in my lap.  The row in front of us was empty, and that is where she stood almost the entire show--dancing the night away. My Imagination Movers  Caleb did his share of singing and dancing too.  He knows most of the words to the songs, so