Our meeting went pretty well today. We discussed a lot of information and there are still a lot of unknowns about Abby's condition. There is much more genetic testing to be done...not that it will necessarily change Abby's care, but knowing exactly what she has may help them to treat certain aspects of her syndromes in the future. However, we are encouraged by the doctors' attitude toward Abby's future and we believe that she will have lots of time to really change the world!! :) They believe that she is beating the odds, and so do we. Abby doesn't know the statistics, and we're not going to be the ones to tell her! We also discussed Abby's future surgeries and the need for an excellent orthopedic surgeon. Thankfully, there is a world-renowned spinal specialist at Hopkins that UMMC is highly recommending! I'm so thankful that we live within driving distance to so many wonderful hospitals! We were told today that by choosing the trach for Abb...
Choosing joy and trusting God!