Today, my sweet friend Betsie made the 3.5 hour trip up to spend the day with us! Her last name is Camilliere, which is hard to say, so Abby calls her Camel Mary. :). 🐫
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Cam is one of those people who is just so full of life and energy that it's contagious! She has been there since the very beginning with Abs, cheering her on and encouraging me. Abby adores her. True to form, she bound into Abby's room lugging a HUGE bag full of fun surprises! Abby was THRILLED!! She then promptly pointed at me and then the door, saying "Goodbye Mommy!" 😂. She's a bit possessive over Camel Mary!
Since I was kicked out (not really--Betsie and I had discussed it ahead of time!) I decided to actually take a little time for myself and get a pedicure at a nearby place. It was wonderful!! Cam even sent me with mindless magazines to read during my pedi!
I grabbed some lunch after and just enjoyed a little time out of the hospital.
I thought about it while eating lunch, and I'm pretty sure the last time I took time for myself was in April when I got my hair cut. 🙈 So today was much needed!
While I was taking a break, Camp Cam was in full force!!! Oh my goodness. This girl didn't just bring coloring books or a game. She brought multistep crafts that included items like sand, glow in the dark puffy paint, sensory beads, "sea" themed animals, and food coloring. Oh, and a laminator....because everyone packs a laminator for a hospital visit!! 😂. They made an ocean bottle, played with sensory beads, made personalized "where's Abby" pages, treasure boxes, and made a firefly bottle. So fun!
It was such a nice visit! Unfortunately, Abby's respiratory issues have increased and she needed the bipap quite a bit today. Her respiratory rates have been higher today than I've ever seen them--over 100, and sustained in the 80s and 90s. Her CO2 is being continuously monitored as well, and has been increasing. We are unsure of whether this is due to the antibiotic she is on or something else, so they are drawing bloodwork first thing tomorrow to check a few levels. In the meantime, I'm hoping we can stay here in our lovely, quiet single room instead of moving back to the PICU!
Tonight, please pray for decreased CO2 levels and slower, deeper breaths. But I'm also thankful for a wonderful day!
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