Cramming in the Normal

I realized I didn't post on here our updated surgery date. If you don't follow me on Facebook, Abby's date was moved up to September 8th. We were really happy about this because her kyphosis is getting worse and the concern for spinal cord injury is real.

I'm so thankful that Abby gets to start school on time, even if it's just for a week. She needs that little bit of normalcy and it's a "first" that should be celebrated!

Speaking of normalcy, Matt and I talked the other night about our constant need to cram in as much normalcy as possible while we can. Crafts, trips to the zoo, pool time...so much fun, so little time. In my urgency to give them so much normalcy, I'm reluctant to just hang out and rest at home. The rain today forced us to have a day at home. After church, we got some things done around the house, the kids played Disney Infinity together, they went over to our neighbor's house for a little while, I made dinner, and we watched a movie. It was nice to just take a breath and chill.

The next two weeks will be busy. Tomorrow is my first day back to work, the kids start school next week, and Abby has PT twice this week. Of course, I'm still trying to cram in the normal! :)

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Cerebrocostomandibular Syndrome

If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS. If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan. The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google. My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!! (a combination of all 3 is great too!) :) Notice that it's not to get famous and it ...

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Life as a Leach

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