Bandage Removal is of the Devil!

Abby is post-op day 7, so it was time to remove her bandages. This is never fun, but tonight was absolutely miserable! They used a different kind of bandage and it was impossible to get off. I always soak it in almond oil to loosen the stickiness, but the oil did nothing to help this time. She was absolutely sobbing and shuddering in Matt's arms while I tried to be as gentle as possible. There were three sets of tears falling by the time we were done. :(

So tonight after Abby was asleep, I decided to work on a project that someone had shared on our VEPTR support group. I used the dot paints to document some of Abby's medical challenges that aren't so fun. We will keep adding to it as a way for her to show off her bravery!

Red = hospital admissions (just admissions, not the number of days--that would fill up the poster!)

Orange = blood draws

Purple = surgeries

Green = xrays and ct scans

I had to estimate a bit on the blood draws, xrays, and cts, but I got as close as I could to the exact amount.

This kind of puts things into perspective, doesn't it?

How big is Abby's brave??

Pretty darn big, girl. Pretty darn big.

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Cerebrocostomandibular Syndrome

If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS. If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan. The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google. My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!! (a combination of all 3 is great too!) :) Notice that it's not to get famous and it never wi

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Life as a Leach

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