Skip to main content

Can't a Girl Catch a Break?!


I'm going to give the very short version of my very long day today.  I'll also spare you some of the grossest details.  Let's just say that this was not the most glamorous day ever.

In the middle of the night last night, Abby woke up writhing in pain and was inconsolable.  It took forever to calm her down and we finally disconnected her feed for the rest of the night.  She was up for several hours in severe pain, but she finally fell asleep and seemed calm.  I'd already planned on checking with her pediatrician in the morning.

This morning when she woke up, there was blood in her diaper.  Many phone calls, another bloody diaper, and a popped g-tube later, my pediatrician told us to get in touch with GI to be seen.

Many phone calls, two trips to the outpatient lab, and a really gross collection later, our GI told us to come in tomorrow--even though we already had a scheduled routine appointment on Tuesday.  These issues, coupled with the delayed gastric emptying we've been dealing with for the last few weeks, are a real cause for concern.  They're running cultures for a couple of different things, one of them being C-Diff.  We do not want C-Diff!!!!  It is really hard to get rid of, it's highly contagious, and it is just an ugly, ugly bacteria.

I would appreciate your prayers.  Today, for the first time, I really just felt like Abby has had more than her share.  I knelt down in front of her and hugged her, so sad that she has to deal with all of this.

Pray also that this won't ruin Caleb's birthday party.  That boy has missed out on too much because of doctors' visits and hospital stays, and I really don't want to have to postpone it.

Her appointment is at 12 tomorrow.  Please pray that they figure out the cause for all of this, they take an aggressive approach (our GI is rather lax at times), and that Abby's pain and discomfort will be minimal.  I'd also love for her to stay out of the hospital!!

No one can say my life is dull.

Comments

Mary Lou said…
Julie....
I just closed my eyes and said a silent, mental prayer for you all. I understand. Trust me, I do.
--Raelyn
Lena said…
I just said a prayer for healing for Abby and a great party for Caleb.
Mary Lou said…
Julie....
I do hope that this comment finds you and little Abby well. I am still thinking about her, worrying, wondering. I just thought that I'd let you know.
--Hugs!!--
--Raelyn

Popular posts from this blog

Cerebrocostomandibular Syndrome

If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS.  If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan.  The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google.  My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!!  (a combination of all 3 is great too!)  :)   Notice that it's not to get famous and it ...

Bath Time Photos!!

As promised, here are lots of photos of Abby's first bath. Caleb was supposed to be in bed, but the bathroom is right next to his room... "I'm not too sure about this..." Once she learned how to splash, she was all smiles! Her first good hair wash! Gotta protect the trach! She really liked getting water poured on her head.  It was cute! Smiley (and bubbly) for Daddy while he dried her off. All clean!!  (Note the Lysol wipes in that last picture.  They are NEVER far away!)

Imagination Movers Photo Recap

Seriously, The Imagination Movers were so much fun!  They played lots of their own music, with some classic rock mixed in for the adults.  There were also quite a few jokes and references to Baltimore, which was kind of fun.   The whole night centered around this robot named Rock-o-Matic, or "Rocko."   This is Mover Scott, and he wears Wobble Goggles that help him see new ideas.  Caleb and Abby have a pair of goggles too.  :) There are 4 main Movers that are part of the TV show, but they have 2 extra movers to play instruments and do back-up vocals in their live tour. Abby finished up her feed before the show started so that she would be free to dance! My dancing queen did NOT want to sit in my lap.  The row in front of us was empty, and that is where she stood almost the entire show--dancing the night away. My Imagination Movers  Caleb did his share of singing and dancing too.  He knows m...