Attempting to Take Photos of Uncooperative Children, Take 2

We have a beautiful lace-leaf weeping Japanese Maple in our backyard that is a deep purple in the summer and a bright red in the fall. I thought it the perfect place to get a few pictures of the kids.

Caleb and Abby thought otherwise.

Caleb flat-out refused to sit there.

Abby sat because ~~she's too young to realize she can just run away~~ she's compliant like that, but she fussed the whole time. Fussy Faces don't make for pretty pictures.

I took one of myself, because I sit still and smile when I'm told.

Comments

Rachel and Daniel said…

Hi Julie! My name is Rachel and my husband and I are friends with Mike and Lindsey Avink. Our 6-month old was born w/a rare disorder affecting his diaphragm and is trached now. Linds told me about your blog. I wanted to let you know that I will be systematically reading your entire story. :)

I've only read a couple posts, but it's already been such an encouragement. Thanks for sharing pieces of your sweet family. Your daughter is beautiful! And congratulations on her decannulation!

November 27, 2012 at 7:37 AM

Cerebrocostomandibular Syndrome

If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS. If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan. The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google. My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!! (a combination of all 3 is great too!) :) Notice that it's not to get famous and it ...

Bath Time Photos!!

As promised, here are lots of photos of Abby's first bath. Caleb was supposed to be in bed, but the bathroom is right next to his room... "I'm not too sure about this..." Once she learned how to splash, she was all smiles! Her first good hair wash! Gotta protect the trach! She really liked getting water poured on her head. It was cute! Smiley (and bubbly) for Daddy while he dried her off. All clean!! (Note the Lysol wipes in that last picture. They are NEVER far away!)

Imagination Movers Photo Recap

Seriously, The Imagination Movers were so much fun! They played lots of their own music, with some classic rock mixed in for the adults. There were also quite a few jokes and references to Baltimore, which was kind of fun. The whole night centered around this robot named Rock-o-Matic, or "Rocko." This is Mover Scott, and he wears Wobble Goggles that help him see new ideas. Caleb and Abby have a pair of goggles too. :) There are 4 main Movers that are part of the TV show, but they have 2 extra movers to play instruments and do back-up vocals in their live tour. Abby finished up her feed before the show started so that she would be free to dance! My dancing queen did NOT want to sit in my lap. The row in front of us was empty, and that is where she stood almost the entire show--dancing the night away. My Imagination Movers Caleb did his share of singing and dancing too. He knows m...

Life as a Leach

Search This Blog