Stream of Consciousness

I haven't done this for a while. I'm watching Survivor and they separated the young from the old. Young = under 30. Old = 30 or older. It made me just a little bit sad that I would be one of the oldest "young" people in the tribe if I were on the show. Yikes! I have been having tons of Braxton-Hicks contractions. Most aren't painful, although some really kind of are. I have them pretty much every evening. I keep telling my body that it doesn't need to practice so much because it has already been through labor once. It's not listening to me. Yep, there's another one. Yay. I have another round of appointments tomorrow. I can't believe it's been 2 months since we found out about Abigail's condition. What a whirlwind! I have a sonogram first and we're hoping to get some information from the doctor we like. I have gained a lot of weight this month while eating very well (lots of fruits and veggies for snacks, avoiding ice cream and sweet treats, choosing a 100 calorie pack if necessary, drinking lots of water, etc.) and I'm a bit concerned about my amniotic fluid levels. We'll find out tomorrow. I have been battling FMLA and insurance in the last week, but I think I have wrapped my brain around it now and have a pretty good understanding of it. My allergies have been bothering me the last few days (ragweed) and I've been doing my sinus rinse to try to avoid getting truly sick. I do not need that. We will also be having an OB appointment tomorrow and I'm hoping to get a date for Abigail's birth! I really need to have a "going out" day for FMLA, and I need to know for my own piece of mind as well. I'm hoping to get on the calendar. After our two UMD appointments, I will be heading back to my primary care provider to get my flu shot. Matt is getting one too! In case you have missed all of my other warnings, if you want to visit Abigail in the hospital, you must have a flu shot. No one will be allowed in the NICU without one. That's just the rule--probably more strict because of flu season, but still it's better safe than sorry. I hate to say it, but I doubt if anyone without a flu shot is going to see Abby for a while even after we get home. She will be very susceptable to illnesses and with her breathing problems, she really can't afford to be sick. Soooooo, get a flu shot!! I am watching Survivor after having paused it for the first half an hour, but I keep forgetting to fast forward through the commercials. Ooops. That kind of defeats the purpose of pausing it. I always feel better after doing the stream of consciousness. I treat it like a mind dump and it seems like my head is clearer afterwards. Maybe I'll be able to fall asleep earlier tonight!

Cerebrocostomandibular Syndrome

If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS. If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan. The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google. My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!! (a combination of all 3 is great too!) :) Notice that it's not to get famous and it never wi

Bath Time Photos!!

As promised, here are lots of photos of Abby's first bath. Caleb was supposed to be in bed, but the bathroom is right next to his room... "I'm not too sure about this..." Once she learned how to splash, she was all smiles! Her first good hair wash! Gotta protect the trach! She really liked getting water poured on her head. It was cute! Smiley (and bubbly) for Daddy while he dried her off. All clean!! (Note the Lysol wipes in that last picture. They are NEVER far away!)

Imagination Movers Photo Recap

Seriously, The Imagination Movers were so much fun! They played lots of their own music, with some classic rock mixed in for the adults. There were also quite a few jokes and references to Baltimore, which was kind of fun. The whole night centered around this robot named Rock-o-Matic, or "Rocko." This is Mover Scott, and he wears Wobble Goggles that help him see new ideas. Caleb and Abby have a pair of goggles too. :) There are 4 main Movers that are part of the TV show, but they have 2 extra movers to play instruments and do back-up vocals in their live tour. Abby finished up her feed before the show started so that she would be free to dance! My dancing queen did NOT want to sit in my lap. The row in front of us was empty, and that is where she stood almost the entire show--dancing the night away. My Imagination Movers Caleb did his share of singing and dancing too. He knows most of the words to the songs, so

Life as a Leach

Search This Blog