tag:blogger.com,1999:blog-8909433475631627375.post7389337261794464330..comments2024-03-27T01:55:20.366-04:00Comments on Life as a Leach: Faces of Cerebrocostomandibular SyndromeJuliehttp://www.blogger.com/profile/13004724438756137490noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-8909433475631627375.post-53690348349169405782019-08-31T17:37:15.652-04:002019-08-31T17:37:15.652-04:00I love seeing this! I have CCMS and I havent found...I love seeing this! I have CCMS and I havent found anyone that has it and I just started college. I knew it was rare enough that most of us that have it don't often make it as far as I have!Tori (They/them)https://www.blogger.com/profile/01277412452559278889noreply@blogger.comtag:blogger.com,1999:blog-8909433475631627375.post-2557738250207968692016-03-16T19:23:09.210-04:002016-03-16T19:23:09.210-04:00Wow I love this thank you and God bless your famil...Wow I love this thank you and God bless your family. My boy has ccms he is 4 months and he is my joy :)<br />Oriana173@Hotmail.com Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8909433475631627375.post-743950445174522322016-02-29T21:21:04.456-05:002016-02-29T21:21:04.456-05:00Julie....
I loved seeing all the "faces of C...Julie....<br />I loved seeing all the "faces of Cerebrocostomandibular Syndrome"!! Sons.... Babies.... Daughters.... Athletes.... Honors students.... Boy Scouts.... Brothers.... Sisters.... {Ah, Abby....} Independent, college seniors.... {Hi, Emily....} These kids are all superheroes, indeed!! ;-D<br />Love you later, Raelyn<br />PS. I was born with craniosynostosis, {1 out of 2,000} congenital diaphragmatic hernia, {1 out of 2,500} and Wolff-Parkinson-White syndrome {3 in 1,000}.... So I guess this qualifies me as being a part of the Rare Disease Club, too.... ;)Mary Louhttps://www.blogger.com/profile/01005199691237610718noreply@blogger.comtag:blogger.com,1999:blog-8909433475631627375.post-17945986363488010832016-02-29T12:48:04.040-05:002016-02-29T12:48:04.040-05:00Julie you are so special and this is a great post!...Julie you are so special and this is a great post! I hope to meet you some day. Emily' grandmother...Judi O'BrienJudi oBriennoreply@blogger.com