In honor of Rare Disease Day, I wanted to share (with their permission, of course!) a little about some of our friends with Cerebrocostomandibular Syndrome.
We are the faces of Cerebrocostomandibular Syndrome.
We are sons. We like painting, cars, and cartoons.
We fight naps! We like to build things and knock them down.
We are superheroes! We love to count, sort shapes, and play with animals.
We are aunts to cute nephews. We love Bruce Springsteen, chick flix, and the New York Giants.
We are college seniors! We live on campus, are presidents of organizations, and are finishing bachelors degrees.
We are independent! We love Chinese food, traveling, and family.
We are college seniors. We are in plays at school, love to shop, and listen to audiobooks.
We are Taylor Swift fanatics! We go to concerts, enjoy movies, and...did we mention we love Taylor Swift?!
We are athletes. We play baseball and bowling and go to hockey games.
We are honors students who participate in Math Counts and Geography Bees.
We are boy scouts who love the outdoors, camping, and riding our bikes.
We are little brothers who wear bow ties, love Dr. Who, and pandas.
We are joyful! We love dolls, I-Love-You-fingers, and laughing.
We are little hams. We sing along to Frozen, love dress-up, and dance like nobody's watching!
We are sisters. We love cuddling, being with our families, and enjoying each day as it comes.
We are the Faces of CCMS...and so much more!
Happy Rare Disease Day!