Saturday, June 30, 2012

Keeping Organized

I have been working, working, working on my house these last few weeks.  Yesterday, I took down, washed, dried, ironed, and hung back up all of the curtains in my house...and I will never do it again!!  It was such a pain!

I've also been cleaning out lots of cabinets, organizing lots of closets, hiding lots of toys to take to the thrift store, and cleaning the things that don't usually get cleaned!

I just read some good organizing tips that I thought I would share with you.  It's from one of my favorite blogs, www.lovethatmax.com, and I thought some of them were pretty good!  I wrote a few comments in red.


Her top three time-organizing tips

• Stick with one kind of planner. "If you have things in multiple places—the wall calendar in kitchen, the app on iPhone, your to-do list—it's a recipe for confusion, doubt and inefficiency."  I completely agree with this.  I do have two, because I have a work and a home calendar.  However, everything that is on my home calendar is also on my work calendar.  I "sync" it at least once a week.  It's also helpful to take my smaller work calendar to doctors' appointments because my hanging calendar is pretty big.  I actually have a Mom's Plan-It Calendar that I absolutely love.  It has a line for each person in the family (and two for Abby!!), which is a much better method than the color-coding I used to do!

• End every day by planning for tomorrow plus two. "One of the most common time-wasting mistakes is waiting till the morning of to plan for the day. By that point, it's too late—if there's a schedule conflict it's too late to manager your way out of it, if there's something you don't want to do you're stuck. But if you plan for tomorrow plus two, a three-day arc, you have context—you can see what's coming up, prioritize, rearrange smartly and make better choices. Plus you can carve out breathing room! If you're reading this on Tuesday, for example, tonight plan for Wednesday, Thursday and Friday."  I wish I did this.  I do check the calendar the night before to plan for the next day, but I don't really fully plan out three days in a row at home--I do for work because my schedule is usually crazy!!   

• Batch wherever possible. "Group your appointments, errands and obligations to masterfully maximize time. Maybe this morning you could have sat and played with your kid. But you had one appointment, which killed the entire morning. If you batch these things, you can leave yourself large blocks of downtime for fun, family or yourself."  I would love to do this, but sometimes that just isn't feasible.  It's harder when the appointments are usually 2 hours away and you have to try to account for a long wait or a lengthy appointment.

Her favorite paperwork organizing ideas

• Keep paper where you refer to it. "If you tend to make calls and fill out forms in the kitchen, that's where you should store your paperwork. Look to where piles are and create a home information center. It's where you want to work—go with your natural habits."  I need to do this.  This is my biggest issue.

• Have a simple system. "Designate a file box, file drawer or hefty accordion file for papers, depending on the volume. Then create a color-coding system, which makes filing clear and fun. Color communicates more quickly than words do! For example, use green for financial documents, blue for vital documents, orange for fun activities. You can also separate adult files and kid files—just use a different color family. For example, Max info can be in fluorescent."  I think I might do this to help keep the "piles" a little more organized.  I'll get on it!!

Ways to avoid clutter/being featured on Hoarders

• Make a place for everything. "Busy parents often don't have a core system, so putting things away isn't easy. You want to go through each room and make sure there's a place for everything, so maintenance is a breeze. That means things are accessible and well labeled and what's in that room is what you use. No matter how messy the room gets or chaotic the day, cleanup will take no longer than five minutes, tops. It takes a day to a day and a half per room to organize a room, but it's worth the time investment."  I'm really trying to do this in my playroom.  It's completely organized now, thanks to two nap times and a late night after bedtime.  Everything is labeled, but it's hard to get everybody to put things back where they should go...especially a little boy who can't read yet!

• Set up stuff for its next use. "Before you leave a room, set everything back in its spot. So when you come in, there's the Scotch tape!"  

• Label, label, label. "Parents think they have to nag or force kids to clean up. But kids love order. In kindergarten, the teacher just announces it's clean up time, and the children go to it. Parents should shift their mindset—don't think of cleanup as punishment. The world's chaotic enough for kids. Make sure things are labeled with pictures if a child doesn't read, and have them participate. It's something any child can do, and makes them feel like they're participating and contributing. It's also grounding; the more chaotic our world gets, the more we gravitate toward rearranging our bookshelves!"  I have a love affair with my label maker.  :)

How to get more me-time 

• Plan to recharge daily. "Moms like to joke that we need a two-month vacation. But we wouldn't need it if we just gave ourselves daily recharge moments. Have a short list of things that quickly restore you, rejuvenate you and recharge you in the most efficient way possible. Whatever it is—going for a drive, taking a bath, calling a friend. It's like a cell phone that you need to recharge every day. Without it, you're not recharging the battery—and you're not as good, as patient, as smart or as accurate. Think about this: You lose two to three hours a day of inefficiency when you're operating on exhaustion.  

• Plan to recharge weekly, too. "This involves a larger amount of time, but recharges you like nobody's business! Make a list of stuff to do, then take that time for yourself.

Friday, June 29, 2012

Relay for Life Photo Recap

June 16th was our local Relay for Life, and our church's team got together once again to raise money and celebrate LIFE!


A very sweaty, dirty Abby


We have "The hoola hooping lady" on our team, who demonstrates hoola hooping for exercise and sells exercise hoops for Relay.  She's quite a novelty!  Anna is trying out a hoop.

My dad and Al, both cancer survivors


The Murphys, also cancer survivors and awesome fundraisers!


Caleb with his Aunt Rosemary



My cute parents :)  My dad is a kidney cancer survivor.



Thursday, June 28, 2012

Don't Judge the Quality of a Person's Life By a Diagnosis


Isn't this awesome???  

Did you know that 9 out of 10 prenatal Down Syndrome diagnoses end in medical termination?

Whether it's Down Syndrome, Cerebral Palsy, or Cerebrocostomandibular Syndrome, you can't judge the quality of a person's life by a diagnosis.  Doctors might try to scare you by describing a life full of doctors, medical equipment, and sacrifices.

Well, yes, we do have a lot of that.  But we also have laughter, hugs, wrestling, dolls, smiles, kisses, sassiness, and cuddling.   And that definitely outweighs the medical stuff!

So please don't judge the quality of a person's life by a diagnosis.  


I'm so glad we didn't!




Wednesday, June 27, 2012

Monday, June 25, 2012

My Day

I drove 2 hours and 15 minutes, paid $6 in tolls, and got lost going to the pediatric dentist today.  This is the one that we were going to in order to get her cavities fixed under general anesthesia at JHH.  Things did not go as planned.

Once I finally got there and we were seen by the dentist, we realized that while she does technically have visiting rights at JHH, her credentials an't in order for her to do any procedures there.  She just graduated (didn't know that!!) and hasn't gotten her paperwork together yet.  This was the entire reason we were going to her.  She suggested that she could see Abby at a different hospital similar to our local hospital, completely missing my reason for going to JHH.  She also suggested sedating her at the office, but I was very reluctant to do that being that there wouldn't be emergency equipment if something were to happen.

Then she suggested going to the dental school to have them work on Abby.  I don't need to describe my reaction to having dental students touch my daughter.

Impressed with her yet?  Me neither.

She was terrible with Abby...didn't even try to talk to her, just pried her mouth open repeatedly and let her cry, flail, and scream.  I'm thinking that is probably bad for business to have a screaming kid in the dentist's chair.

Then she says she doesn't think Abby has any cavities after all.  She thinks it is just staining.  That could be true, but it is the complete opposite of what our original pediatric dentist said...who has a whole lot more experience.

Sooooooooo...I figured we needed to get a third opinion from someone who really does have visiting rights at JHH.  I called the other number I was given and was fortunate enough to get an appointment for tomorrow.  It's back up to Baltimore again, but at least it's in the city where I know where I'm going.  (I never thought I would say that phrase!!)

To make a bad day even worse, I found out today that Abby is not covered by my dental insurance. Awesome.  My first sinking feeling was that it was my error when I completed the original paperwork.  But a call to our local plan administrator confirmed that my paperwork was fine and that it was an insurance error.  Shhhhhew!  If we do get charged for any of the dental visits, they will have to reimburse us.   Thank goodness.

Hopefully, tomorrow will be better, with this dentist being the "tie-breaker."  Are they cavities, or not????  This is the question!

You Might Be an Ronald McDonald House Family If...

...You notice a soda can in the trash and consider reaching in and pulling the tab off...and sometimes do!

...It seems like complete strangers "get" you more than people you've known for years.

...You wear your red and yellow bracelet with pride.

...Your children have a deeper understanding of what it means to love others unconditionally.

...Checking the resident mailboxes is the highlight of your kid's day.

...Your five year old has ever stood in the middle of a McDonalds telling customers how important it is to put change in the donation container.

...Your family is a whole lot bigger these days!

...You have ever wished for "Activity Hour" when you're at home and have run out of things to keep your kids busy until bedtime!

...Tears are shed for families going through a particularly tough time.

...You get used to taking an elevator up two stories to get to your bedroom.

...You have no problem striking up conversations with people you don't know.

...Your children get ridiculously excited about going to the hospital because it means staying at RMH.

...You get a huge smile on your face whenever you talk about "The House That Love Built."

...You understand that "family" is more than blood lines.

RMH Families and Staff:  got any others?  Please add to my list and I'll repost the new and improved version.  :)

Sunday, June 24, 2012

Reflections of MW

So, we've been home for several days now and I can't get several faces out of my head.  Their stories just break my heart, and I wish there was something I could do.

The first is a little boy who was SO incredibly friendly.  He had a contagious laugh and called everyone Momma when you came to see him...except his real Momma. She didn't even talk to him when she came to pick him up at discharge (and it kind of seemed like that might have been the first time she had seen him since admittance), and he didn't give her the time of day either.  It was like he knew that his caregivers thought more of him than his mother.  I'm well aware that I am only seeing one snapshot of a very big picture, but it hurt my heart to see such a lovable little boy treated so nonchalantly.

The other is a little girl Abby's age who has been here since she was released from the NICU.  She has never been home.  Doesn't that just break your heart right there?  She had a trach and was vented, so I was immediately drawn to her in the playroom.  I asked if Abby and I could play with her, and the therapist teared up when she told me that she had never had parallel play before.  At 20 months old, she had never played with another child.  SO sad.  Abby had a great time sharing a popper toy with her, and the smile across that sweet baby's face was priceless.  It just makes me wonder how much this baby could be doing at 20 months old if she were home with supportive parents who worked with her.  I'm tearing up just thinking about it.

I will never understand how parents can just cast their children aside because they don't fit the world's mold of perfection.  I will tell you from experience that having a special needs child will absolutely change your life for the better.  You will learn a compassion and empathy that can only truly be understood from experience.


grUVy girl

I don't know about you, but my kids HATE, H-A-T-E putting sunscreen on.  You would think I was torturing Caleb by the way he was screaming, instead of helping him to have an enjoyable time outside.  I keep telling him that someday he'll thank me, but he hasn't gotten there yet.

I have gotten Caleb the UV shirts since he was a baby because it's that much less sunscreen I have to rub in, but it's harder to find UV shirts for little girls--especial UV shirts with swim trunks to go with them!

So I was super excited to be able to try out the GrUVy Wear brand of swim attire!  They have some super cute surfer-style patterns in every size from infant all the way up to adults.  There are even adorable swim skirts for the fashionable girls! They have a whole line of rhinestone and decal shirts too with everything from LOVE to skull and crossbones printed on them...if you're into skulls and crossbones!

The swimshirts are all UPF (Ultraviolet Protection Factor) 50+, which means that is it protects 97.5% of all of the harmful UV rays.  This is super important to me, coming from a family of fair-skinned people with lots of cancer spots constantly being removed.  I don't let my kids burn, whether they fight me on the sunscreen or not!

Here's Abby in her little GrUVy Girl swim suit!


The material is really comfortable and it dries super quick.  In fact, when she started in on her heavy-duty splashing, the water just kind of beaded up and fell right off.  It was pretty cool!  




As the mom of a tubie, I MUCH prefer the shirt to the one-piece bathing suit.  Abby gets fed via gtube every 4 hours, and it would be a real pain to have to take her bathing suit off to hook her up.  I actually fed her in this swim suit this morning because I was too lazy to change her I wanted to get the full effect of the swim suit in all its glory!

Normally, Abby is soaking wet by the time she's done with the water table.  But since the water beads up so much, she was dry in no time and even went out to her playhouse for a little while.


Hey, look!  You can even pull weeds in it!  :)


The weeding was not part of the original plan, and thus the swim suit got very dirty.  I was a little nervous that it was hand wash/drip dry only, but the dirt rinsed right out and now it's just hanging in my laundry room.

I was lucky enough to receive a complimentary set of swimwear for my Abby Girl to try out in exchange for writing a review for the company.  As you should know by now, I don't lie in my reviews.  The opinions expressed in this post are all my own, and I really do love the suit!  If only Abby could get some real beach or pool time with it, instead of just having to stick around the water table.  Soon, soon!

If you'd like to get one of these for your anti-sunscreen kiddo, check them out here.    I'll even give you a coupon code for 15% off, because I love you so much!  The code is:  SAVE1531  





Saturday, June 23, 2012

Heartbreaking

A friend of mine passed away very suddenly on early Tuesday morning after his apartment caught on fire.  You can read about the details here, but he went back in to get something after he got his girlfriend out safely.  I guess we'll never know what it was that was so important.

I've known Joey practically my entire life.  His family went to our church, my mom taught Joey, we sang in the same choir and were part of the same youth group.  He was an extremely intelligent guy who could memorize entire chapters of the Bible.  He'd just graduated from law school and was working as a law clerk for a judge--no doubt with hopes to be sitting with a gavel in his hand one day!

Today is the funeral, and I can't imagine what is going through their heads.  It must be a horribly surreal feeling to sit and listen to people talk about your child in past tense.

My heart is broken for his family.  Please pray for the Goulart family as they go through this horrible time of grief.

Friday, June 22, 2012

Where Do We Go From Here?

I'm a planner.  Have I mentioned that before?

I like to have a plan.  So imagine my discomfort in not really having a plan for getting Abby's trach out.  To avoid false hopes, we would answer, "Ohhh, after she goes to school" if someone asked when she might be able to get it out.  It was just easier that way.

Well, noooooooooow, we have a plan.

And I. LOVE. IT.

After Abby has been successfully off of the vent for a month, we'll start capping her trach.  This is when we put a little plug in it so that it's not being used at all and she has to do everything through her nose and mouth.  It's awfully nice to know you can just pull the plug out if she struggles though!  I have strategically scheduled her ENT appointment for almost exactly a month from today so that we don't waste any time!

Once she caps successfully while she is awake (which depends on Abby, but our ENT thinks this will be a quick process), she will go for another sleep study where she will be capped while she is asleep.  The results of this study will determine our next steps, so this is where I feel like I am writing one of those "you determine the end of the story" books.

If the capped sleep study is awesome with no issues, Abby will be ready for decannulation, which makes me sound fancy, but it really just means taking the trach out.  This doesn't usually happen in the winter because it's cold and flu season, so we'd be almost just setting her up for failure.

If the capped sleep study shows obstructive sleep apnea, which is when Abby stops breathing because there is something--her tongue--blocking her teeny little airway, then things get a little more complicated.  Abby will most likely have a jaw distraction, which I have mentioned in a previous post.    It's not a fun surgery, but it may be necessary if she wants to breathe without a trach.

Once that surgery is done, then Abby will hopefully decannulate. It just adds an extra step to the process.  Either way, we also know that she will have her tonsils and adnoids removed before the trach is taken out.  That is pretty standard, just to clear the airway as much as possible.

We're looking toward decannulation in about a year--or possibly even less.  Yippee!!  It is still rather surreal to me that Abby is no longer on the vent, much less that we are discussing decannulation at almost every specialist appointment we have.  Wow.

And here's a sweet picture from her MW stay.  Just because I love you and I know you'll love it!


  

Thursday, June 21, 2012

Abby's Boyfriend

Abby had her first crush while she was at MW.  In fact, it was on one of her roommates.  Yes, the rooms are co-ed up until a certain age.  I'm thinking I need to request an all-female room next time or we will be in some major trouble!!

The two of them would "talk" to each other from their sides of the room, wave, and blow kisses.  Abby would head right over to see him when she was out of her crib, and he would laugh and get so excited.  When they went with a few other friends to the playroom, the two of them sat in the cart together and Abby kept trying to hold his hand.  They gave each other lots of hugs too.  It was absolutely hysterical and a little frightening to see her all googly eyed over a boy at such a young age.

Sadly, the boyfriend ditched her for discharge...and left during Abby's nap without even so much as a goodbye!  Abby woke up and immediately noticed he was gone.  She was bitter the rest of the day.  Look out, ladies.  He's a heartbreaker.


Wednesday, June 20, 2012

Hospital Recap

Sorry for not posting while we were in the hospital.  Turns out, MW does have wifi (thanks Gila!), but it took a day for someone in IT to come approve my laptop, and when Abby went to sleep and I had time to post, I discovered that Blogger is not an "approved" site.  Scandalous!

If we're Facebook friends, you already know most of the story.  Here's the condensed version.  :)


We get there and it turns out that "they" (still not sure who "they" are) forgot to schedule the sleep study, which is the entire reason we are there.  She's on the waiting list, but we may have to wait until the following Monday to do the study...which means being in the hospital until Monday...which means exposing Abby to unnecessary germs.  Ugh.  Not too happy!  We found out Tuesday afternoon that she would have it that night, which was perfectly fine with me!  We actually ended up getting out a day early.  Woo hoo!  Abby did great the first night off the vent and sailed through the sleep study with flying colors.  The doctor who reviewed the initial assessment said it looked perfect.  :)






For the first two days, we had the most delightful Gila as our nurse, who is a self-proclaimed blog stalker.  Turns out, she knows everything about Abby and didn't really need me to fill her in on anything!  We knew Gila from our first time around at MW, and Abby adores her.  She absolutely cracks me up with her tongue-in-cheek humor.  She ranks right up there with "our" Megan as far as favorite nurses go!  I most appreciated that she valued my role as Abby's mom and her #1 advocate.  She made my stay much more bearable, and I missed her on our last day!  Thanks for making me smile, Gila!  (I know you're reading...) :)


MW no longer has all of the original teaching sheets stating our proficiency in trach care because it was too long ago, so guess what I had to do???  It was mildly annoying because we obviously know how to take care of our daughter and have been doing it since we came home 17 months ago, but I rolled with it.  Matt was really mad, but I told him not to stir up trouble because we didn't want Abby to be there any longer than she had to be.  Plus, I was doing all of her cares anyway, so they might as well just check me off on it.  So I suctioned, changed her trach ties, changed a trach, explained the necessity of a trach, and listed signs of respiratory distress.  And I passed!!!  Good thing!


So, here I am again, in Abby's room...watching my girl sleep...ventless!!!!  I was flat-out told in the NICU that Abby would be ventilator-dependent forever.  I'm certain that the "helpful" doctor who felt the need to inform me of this "fact" would be shocked to hear that not only is Abby no longer vent-dependent, but that she got rid of it when she was less than two years old.  Ahhhh-maaaaay-zing.  So there, Negative Nelly NICU Neonatalogist!






Sunday, June 17, 2012

Happy Father's Day!

Happy Father's Day to an amazing father and husband!  We love you, Daddy-o!




We're off tonight to do some Father's Day crafts with some pretty brave kids at The Ronald McDonald House.  I'm so thankful for an organization that allows families to celebrate holidays like this together!

I'll post when I can over the next few days. MWPH doesn't have WIFI, and I'm not sure how much I'll be able to do from my phone.  One thing is for sure--there will definitely be VENT-FREE sleeping pictures!!  :)

Saturday, June 16, 2012

Doll Baby

My little doll baby loooooooooves her doll babies!!

The other night, she went to the stairs to go up to bed with her beloved Beth (the one with the brown hair who looks an awful lot like Abby!) in her arms.  As she got to the gate, she let out a loud, OH! and ran back on a mission.  She found her little soft, pink, no-named baby and came running back to me with the cutest little grin I've ever seen!  I had to help her up the stairs because her arms were so full of babies!!




I made sure that Beth got packed after Abby fell asleep, because it would be so sad to leave her here!  She literally goes everywhere with Abby.  We "feed" Beth when Abby eats (which definitely helps with the feeding!!), Beth comes in the bathroom when Abby takes a bath, we have tea parties with Beth...so it's only natural for Beth to be there for the vent weaning!!

Thursday, June 14, 2012

Weaning Update

Here's a really quick weaning update:

We are officially going in on Monday!!  We've got a whole lot to do between now and then, and we'll actually be staying at RMH on Sunday (we were already volunteering, and we have to be back the next morning anyway!)  I've got a box full of toys packed for Abby to play with in the hospital, and I've started gathering up the medical supplies I need to take with me.

We're really excited about this.  It's been a looooooong time coming, and I know Abby is ready!  I may not post too much between now and then because we'll be at Relay tomorrow, furiously packing and cleaning on Saturday, and celebrating Father's Day on Sunday.  My laptop will be going with me to Baltimore, so I'll try to update when I can.

Thanks for all of your prayers!  My prayer warriors were working overtime last night, because the insurance company approved our vent weaning a whole lot quicker than anyone thought they would!  Keep it up!  :)

Decorating

With all of these beautiful family pictures, I have been very inspired to do a little decorating around the house.  Here's a glimpse at our recent mini-projects:

3 frame in main hallway


I love this Family Rules canvas that I found at Kohls!


This is a wall art decal in our kitchen



This is in our playroom


Two pictures of Abby with my bracelet that I've had since she was born.  The verse below is the verse on my bracelet.


This is on the wall in our living room.  The three lower pictures are Abby's hand with each one of ours, and the top picture is all of us together.


Our living room with some 8x10s of the kids and a wall art decal.



I'm really excited about the new decorations on our walls!  It's easy to be inspired when you have such cute kids!  ;)

Wednesday, June 13, 2012

So is Abby Weaning Off of Her Vent, or What?????

The answer:  I don't know.

The hospital where she is going to do the weaning just told me today that they will have a bed for her.  I thought all of my worries were over and I could finally say that we were definitely going on Monday.

Wrong.

Turns out, they didn't put in the pre-authorization request to our insurance company until today.  This process usually takes three days before you get an answer.  Hmmm...today is Wednesday...uh, yeah, that would be FRIDAY afternoon before I'm going to get an answer about whether or not Abby will be inpatient on MONDAY morning....with Relay for Life, Father's Day activities, and volunteering at RMH in between.

I have no idea why they waited this long when they were contacted a week ago about Abby coming in.  It seems to me that ball could have started rolling quite a bit sooner!!

I called my insurance case manager (yep, they have case managers for the "special" policy holders who cost them a lot of money...) to see if she could expedite the process a bit, only to hear on her voice mail message that she will be out of the office through Friday.  Of course.

So, I'm at the mercy of the medical director...who already LOVES me from our last little run-in with the insurance company when he tried to take away our night nursing.  I won't be the least bit surprised if this not so little request is denied...especially since the guy at the hospital said that our particular insurance company is famous for denying these "voluntary" admissions that really aren't voluntary.

I've started packing as if we're going, just because there's so much going on and Abby has so much stuff that I really need to pack a little each day.  I can't exactly run to the Rite Aid down the street for a ventilator battery or suction tubing if I forget something.  Plus, we'll be going sometime and it will be that much less to pack when the time comes.

I haven't officially cancelled everything yet (everything being doctors' appointments, speech, OT, PT, and both day and night nursing) because I'm afraid that if I cancel it I won't get it back.  The biggest thing is the nursing...the other things can be rescheduled.

What a frustrating day this has been.  If you think of it, please pray that the insurance will approve the hospitalization and that Abby will get in for her vent weaning on Monday.  And pray for my sanity.  Oy.

Sunday, June 10, 2012

The Water Table


I spy a little girl who loves the water table!






I love that she can play, get wet, and enjoy herself in the water without the danger of being submerged. She loved it!!!!  I see lots of afternoons on the back deck in our future...



Saturday, June 9, 2012

Why You Need a CSA if You Have Kids

We got a CSA this year.  If you're not familiar with it, a CSA stands for Community Share Agriculture.  There are different kinds, but the most common is for people to get some of what is grown on the farm.

I didn't like that kind because I don't like the idea of getting stuff I've never heard of and wasting money because we're not going to eat it, so I decided to go with a CSA where I choose the veggies.  More or less, we're paying someone to garden for us.  I get the veggies without having to do any of the work!!  :)

So far, we've enjoyed a ton of mixed lettuce, some broccoli, and carrots.  We'll be getting food all the way through the fall, so I look forward to lots of yummyness!

So why do you need a CSA if you have kids??  Caleb absolutely LOVES picking the vegetables in our garden and has learned so much about where our food comes from.  As a result, he is choosing to eat many more vegetables too--all the while proclaiming, "We grew this in our garden!"  I've been amazed to see him choosing carrots for a snack.  He swears they taste different when they're fresh.  I have to agree!

If you've got a picky eater on your hands, consider joining a CSA--especially one where you choose what you want to grow!

Friday, June 8, 2012

Thursday, June 7, 2012

Mark 10:27

My sister gave me a bracelet right after Abby was born to remind me "For with God, all things are possible."  I have worn it ever since as a constant reminder not to lose faith.  God can perform miracles!

This was taken in the NICU in November, 2010 when Abby was just two weeks old.


This was taken in May, 2012 when Abby was 18 months old!

See everybody?  For with God, all things are possible!



Wednesday, June 6, 2012

Vent Weaning News!!!!!

Abby had her pulmonology appointment today, and it was full of nothing but good news and praise for how well she is doing!!  Our doctor feels like she is definitely ready to go into MWPH for a few days to be taken off of the vent once and for all!!

The way it will work is that she will come in, sleep at MWPH for two days off of the vent while being monitored, then do a sleep study off of the vent on the third day.  The reasoning behind this is that sometimes kids get worn out by the third day and start having issues.  If her sleep study is good, we'll be going home, SANS VENT!!!

(Well, we will still have the vent for a while, just in case.  But it will sit in the closet and will not be used!!)

Since we are a "voluntary admission," (don't quite get that, since we have to go, but whatever) Abby could get bumped if a more serious case comes up.  That's perfectly understandable.  If everything works out, we'll be going on/around June 18th...as in, a week from Monday!  As in 12 days!!!

This is one hospital stay I am really looking forward to!  Just think...some of those doctors in the NICU thought Abby would be vent-dependent for the rest of her life...

Thank you, Lord, for strengthening my daughter's lungs!

Wordless Wednesday



Tuesday, June 5, 2012

Caleb and Abby

I love these pictures because they're not perfectly posed.  They capture exactly how Caleb and Abby are every second they're together.  They really love being together, and I hope that never changes!